Shaken baby gets another chance: Foster family helps Destiny beat the oddsCurnutte, Mark. Cincinnati Enquirer, Feb. 22, 2009."For all intents and purposes, this mother murdered her. In terms of any quality of life, she took it. This case is the worst one I've seen in 25 years of any shaken baby who survived." -- Myra Wheeler, caseworker, Hamilton County Job & Family Services
Destiny Concepcion never will walk. She eats mostly through a feeding tube punched into her stomach.
At 18 months, she wears a patch 6-8 hours a day on her stronger left eye to stimulate her weaker right eye, one of the serious injuries she suffered when her mother shook her 15 months ago.
On Nov. 21, 2007, Halloran Carr
fractured Destiny's skull when - frustrated with her daughter's crying - she shook the tiny child in their Colerain Township home. Destiny is cortically blind, which means her brain can not intellectually process what she sees.
Judge William Mallory of Hamilton County Common Pleas Court sentenced Carr on Jan. 22 to the
maximum eight-year prison term for child endangering.
Destiny's injuries horrified even the most hardened officials charged with protecting children. They predicted a grim future for Destiny during her mother's sentencing hearing - words backed up by their decision to put the child with one of their top sets of foster parents.
Destiny's gloomy prognosis almost came true three days after she was placed with Robin and David Steele. The little girl suffered cardiac arrest when out shopping with the family. An emergency room nurse came into the store just at that time and kept her alive.
"Our angel that night," Robin Steele said in reference to the nurse.
Destiny has shown to be a fighter.Born Aug. 21, 2007, she was 14 weeks premature. She survived the shaking Nov. 21, the three-month mark of her birth. She needed six weeks to recover in the hospital from her heart attack Dec. 7.
The little girl continues to surprise the team of people watching over her growth and development and
she has achieved a series of minor victories nurtured through the attentive hands of her foster parents.
Life has indeed gone on for Destiny, just a month after her birth mother's case disappeared from the news.
The upstairs study of the towering Victorian in Winton Place was warm but airy - its yellow walls brightened more by the sunlight bouncing off the thick blanket of snow outside.
Five of the Steeles'
10 adopted children ran in and out of the house, the clomping of their boots echoing off hardwood floors below.
Destiny, dressed in pink corduroy pants and a long-sleeved shirt, rested on a small pink quilt.
Robin Steele sat at the girl's feet and with her left hand gently exercised Destiny's arm in a slow, up-and-down movement.
The foster mother then picked up the child and held her face close to hers. Destiny cooed and giggled when Robin Steele tickled her cheek with a kiss.
"It's not like she is completely out of it," Robin Steele said when asked about the comments made in court at her mother's sentencing.
"She has awareness. Destiny's life was not over when she was shaken. There is a little girl with potential."Emotional arrival
Even before her heart attack, Destiny's first few nights with her foster parents put Robin and David Steele on an emotional edge.
He slept on the floor in the study beside Destiny, who was in an infant seat. He wanted to make sure he could hear her.
"She was so quiet," he said.
Robin Steele shook her head.
"How she got so frustrated with the baby crying," she said, her voice trailed off to silence before she could finish her thought about Carr.
Michael, 7, the Steeles' youngest adopted child, ran up the stairs to check on his parents. David Steele sat on the office chair at the computer. Michael hugged his father and turned to run back outside.
"Michael's twin brother was killed by his foster parents," Robin Steele said. "He had a lot of issues that needed caring. By the time everything sorted itself out and he was free for adoption, he had been with us for a long time. We are getting older and out of the range of adoption."
The unspoken question is would they adopt Destiny.
"If we were 10 years younger, no question we would keep her," said Robin Steele, who, like her husband, is 59.
"Destiny deserves somebody who's younger than we are to ensure she's going to have longevity." Destiny's needs are great.
Specialists galoreShe sees a team of nutritionists at Children's Hospital Medical Center. Twice a week she visits the Perlman Center at Children's, a division of United Cerebral Palsy of Greater Cincinnati, where she receives more treatment. She also has appointments with an ophthalmologist and at the Cincinnati Association for the Blind and Visually Impaired. She has a pediatrician and an ear, nose and throat specialist. Her treatment team includes a speech teacher and an occupational therapist. Her foster parents administer three drugs each day: Keppra to prevent seizures; a second, Prevacid, to reduce the dangerous effects of reflux; and the third, Baclofen, to improve muscle tone.
Caring for Destiny is a round-the-clock job. She receives her first medication at 5:30 a.m., the last at 10:30 p.m. She receives an eight-hour feeding of PediaSure - a milky liquid that meets all of her nutritional needs - overnight through her gastronomy tube. Although she now can eat some baby food - strained meat, vegetables, fruit - she cannot swallow efficiently enough to stay alive.
Just 5 pounds at 4 monthsDestiny weighed less than 5 pounds when she entered foster care at four months old.
She now weighs 17 pounds, 6 ounces - close to normal.
She could take only one ounce of formula at a time. "And you had to catch her awake, or she wouldn't eat," said David Steele, a former special education teacher.
She likes ice cream and suckers and can make it known when she wants more. The couple took a push-button device and recorded Robin Steele's voice saying, "More please." When Destiny wants another small helping she bangs the button: "More please."
Destiny will slump in her wheelchair or stroller. David Steele will encourage her, "Get your head up, please," he will say. And the little girl will struggle to look up.
"Communication," David Steele said. "We want to help her work a mouse at a computer. She might not be able to walk, but she can be mobile. She might be able to only eat baby food ..."
"One day at a time," said Robin Steele, interrupting her husband. Though a realist, the woman refuses to place limits on Destiny.
Destiny requires all of the Steeles' experience and savvy as foster parents. The couple coordinates communication between the medical specialists.
Destiny is the Steeles' 57th foster child. They have two now, in addition to their birth son and 10 adopted children.
"We always wanted a baker's dozen," said Robin Steele, who, like David, has an undergraduate degree in education. "We've reached it a couple of times."
Destiny is not the couple's most physically or mentally injured foster child.
"We had a little girl who was a drowning victim of her parents," Robin Steele said. "She was totally unresponsive. That was hard. She eventually was returned to her birth family."
(why?)No waiting for help
Destiny probably has more long-term physical and developmental challenges, David Steele said.
Robin Steele doesn't wait for social workers or doctors to make treatment arrangements. She aggressively worked the phones to set up appointments to get Destiny what's known as early-intervention treatment.She is also a flesh-and-bone mother who bonds with the children in her care, including each of her 57 foster children. A year has been more than enough time to tighten her bond with Destiny.
"It's not very different between how I feel about her or any of the foster children or adopted children or birth child we have had," she said. "When we know a foster child is going back to their birth family or to an adoptive home, I can feel myself pulling back. It is a day-to-day commitment.
And as long as she is with us, we will love her like she is ours."You know there is another child around the corner who is going to need you enough."
Told too often - Robin Steele said - that Destiny has insurmountable physical and developmental challenges, she offered a pull toy as evidence of a skill that experts once thought was out of her reach.
A plastic frog rests on blue-and-red wheels. Red-and-yellow balls pop inside a clear dome when pulled. The Steeles were told Destiny could not learn enough fine motor skill or hand-eye coordination to pull the plastic string.
David Steele placed the toy beside Destiny on the quilt. Robin directed the girl's attention to the toy.
She needed repeated attempts to grasp the drawstring in her left hand, but Destiny finally manipulated it into her fist. She tugged it. The balls snapped loudly.
Destiny grunted and giggled. And then she smiled at Robin Steele.
"I cry for Destiny. I will spend the rest of my life thinking about her and crying for her." -William Mallory, judge, Hamilton County Common Pleas Court.